are a number of organisations similar to
ours who can offer help, advice and
support to the families and friends of
those suffering from Menkes Disease, but
we highly recommend professional medical
advice before following any of the steps
or treatments posted on this website.
professional help, please consult your:-
Community Nursing Team.
Medically trained Dieticians.
Further assistance and advice can also
be obtained from:-
Respite Charitable Organisations.
Disability Living Allowance (DLA).
Details of which can be found online.
Finally, do not be afraid to ask for
help or assistance from your friends and