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Registered Charity No: 1130455

Terms / Privacy



Menkes Foundation UK is a non-profit-making organisation which is registered in England and Wales by the Charity Commission. Registered Charity Number: 1130455.

We are an independent group who's main aims are to promote awareness of Menkes Disease and the ways in which the disorder affects sufferers and their families, offer information and advice to people affected by the disorder through our own personal experiences, and to raise funds via our sponsored events and activities.

We are not medical professionals or specialists in the area of treatment or diagnosis of Menkes Disease and strongly recommend seeking professional and medical advice before following any of the advice or information provided on this website.

Menkes Foundation UK accepts no responsibility for any harm or distress caused to any individual(s) as a result of following any of the advice or information offered by this website where professional and medical diagnosis has not been made and/or advice sought.

Your Privacy

The Menkes Foundation UK website does not intentionally use cookies as a way of collecting and/or storing data in relation to your visit to our website.

Any information freely submitted to us by yourself via electronic means, our online contact form, and/or word of mouth (including via telephone) may be stored for our own personal use including the promotion of up and coming fundraising events and/or activities and major updates to our website. This information can include your name, email address, postal address, telephone number and/or mobile telephone number.

You can request exactly what information Menkes Foundation UK holds in relation to you, or request that any information we hold in relation to you be removed by emailing us at Please allow up to 28 days for your request to be sanctioned.

Under no circumstances will Menkes Foundation UK disclose, sell, or freely pass on any information held regarding visitors to our website and/or those individuals to which personal information is held to any third party unless, in the event of legal or criminal investigation it is a legal requirement for us to do so.

All personal information held by Menkes Foundation UK is protected by the Data Protection Act.

Our Website

All original material including graphics, photographs, text and programming script is copyright to Menkes Foundation UK and should not be copied, altered, or otherwise used without our permission.

We have taken all steps to credit the originators of any non-original material used on this website wherever possible and will not be held responsible for the use of any copyrighted material (other than our own) used anywhere on this site. We believe that all non-original material used on this website has been taken from the public domain of the world wide web.

If you feel we have mistakenly used any material belonging to you on this website, then please contact our Webmaster to request it's removal. Removal can take up to 14 days.

Menkes Foundation UK nor it's websites Webmaster will accept any responsibility for the content or validity of any third party webpage, website or social media networking site linked directly or indirectly to this website.




2014 - Menkes Foundation UK - All rights reserved.

Registered in England and Wales with the Charity Commission - Registered Charity No: 1130455


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