Menkes Foundation UK is a
non-profit-making organisation which is registered in
England and Wales by the Charity Commission. Registered
Charity Number: 1130455.
We are an independent
group who's main aims are to promote awareness of Menkes
Disease and the ways in which the disorder affects sufferers
and their families, offer information and advice to people
affected by the disorder through our own personal
experiences, and to raise funds via our sponsored events and
We are not medical
professionals or specialists in the area of treatment or
diagnosis of Menkes Disease and strongly recommend seeking
professional and medical advice before following any of the
advice or information provided on this website.
Menkes Foundation UK
accepts no responsibility for any harm or distress caused to
any individual(s) as a result of following any of the advice
or information offered by this website where professional
and medical diagnosis has not been made and/or advice
The Menkes Foundation UK
website does not intentionally use
cookies as a way of collecting and/or storing data in
relation to your visit to our website.
Any information freely
submitted to us by yourself via electronic means, our online
contact form, and/or word of mouth (including via telephone)
may be stored for our own personal use including the
promotion of up and coming fundraising events and/or
activities and major updates to our website. This
information can include your name, email address, postal
address, telephone number and/or mobile telephone number.
You can request exactly
what information Menkes Foundation UK holds in relation to
you, or request that any information we hold in relation to
you be removed by emailing us at
firstname.lastname@example.org. Please allow up to 28
days for your request to be sanctioned.
Under no circumstances
will Menkes Foundation UK disclose, sell, or freely pass on
any information held regarding visitors to our website
and/or those individuals to which personal information is
held to any third party unless, in the event of legal or
criminal investigation it is a legal requirement for us to
All personal information
held by Menkes Foundation UK is protected by the Data
All original material
including graphics, photographs, text and programming script
is copyright to Menkes Foundation UK and should not be
copied, altered, or otherwise used without our permission.
We have taken all steps
to credit the originators of any non-original material used
on this website wherever possible and will not be held
responsible for the use of any copyrighted material (other
than our own) used anywhere on this site. We believe that
all non-original material used on this website has been
taken from the public domain of the world wide web.
If you feel we have
mistakenly used any material belonging to you on this
website, then please contact our
Webmaster to request it's removal. Removal can take up
to 14 days.
Menkes Foundation UK nor
it's websites Webmaster will accept any responsibility for
the content or validity of any third party webpage, website
or social media networking site linked directly or
indirectly to this website.