this current moment in time, there is
unfortunately no known medical cure for
those suffering from Menkes Disease.
injections are a way of treating the disease, but for best
results need to commence within the first few weeks of the
child's birth. The copper injections can be administered in
three ways, under the skin, in the muscle, or directly into
the vein. there are however side effects which occur with
the copper injections which can cause Electrolyte
Disturbances and associated seizures.
In general, it is felt
that starting Copper Histidine Therapy later in the disease
process is not justified and is more likely to have more
side effects than benefits. There are mixed views regarding
this treatment, and it is strongly recommended that you
speak to your Consultant who can point you in the right
direction and provide you with the appropriate research on
At present, there are no
confirmed therapies that are beneficial to those suffering
from Menkes, but things are changing quickly.
The best medicines for
those suffering with Menkes is love, lots of cuddles and
quality time spent with your loved one.