Menkes Foundation UK was formed because
as a family, we have been directly affected by this rare
metabolic disorder, and through this, understand the needs
and challenges faced by families with children who have a
life limiting illness such as Menkes.
Our main aim is to offer
help, advice and support, and to help raise much needed
funds to aid ongoing improvements in research and education
via our sponsored fundraising events and activities.
This website has been
designed to answer just some of the questions you may have
relating to Menkes Disease, it's symptoms and it's
treatment, as well as providing information on our up and
coming events and how you can help us.
We hope you find our site
useful and that we are able to answer all of your questions
and concerns. If however you need more information, please
feel free to use the 'Ask a Question' form or contact us
using our online form.