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Registered Charity No: 1130455

About Us



The Menkes Foundation UK was formed because as a family, we have been directly affected by this rare metabolic disorder, and through this, understand the needs and challenges faced by families with children who have a life limiting illness such as Menkes.

Our main aim is to offer help, advice and support, and to help raise much needed funds to aid ongoing improvements in research and education via our sponsored fundraising events and activities.

This website has been designed to answer just some of the questions you may have relating to Menkes Disease, it's symptoms and it's treatment, as well as providing information on our up and coming events and how you can help us.

We hope you find our site useful and that we are able to answer all of your questions and concerns. If however you need more information, please feel free to use the 'Ask a Question' form or contact us using our online form.

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Registered in England and Wales with the Charity Commission - Registered Charity No: 1130455


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